Accepted. Living with Down-Syndrom
To what extent can you reduce prejudices?
How the book started.
Twenty years ago in France I entered the dining hall of a youth
hostel where a large group of handicapped youngsters was spending
their holiday. I suddenly found myself surrounded by them, was completely
shocked and was quick to leave the room again.
A year ago I was asked
by the Carinthian self-help group of parents of children with Down
Syndrom to provide the photos for this book and in doing so I hit
a wide range of prejudices. Many of the people I told about this
project felt sorry for me for choosing such a depressing topic. They
themselves didn’t know any children with Down Syndrom,
their views were based on prejudices.
I have never worked on a topic
that was so full of love.
I could watch, accompany and photograph
43 children and adolescents. At the beginning they were all very
wary and reserved, but later they were just as open, cheerful and
grumpy, loud and subdued, charming, embarrassed and self-confident
as children and young adults are.
I think for the parents of these
children it is even more important to face life in a calm and self-confident
way, because the confrontation with themselves and society is much
more demanding. Not only the parents, we as well have to learn to
accept those children the way they are.
Basically it’s up to
us all to create a good quality of life for everybody.
The book does
not ask the question, “What would I do?” and
no distant ”How can the parents cope with this?” It
is intended to offer a simple and direct view: “This is the
way it is.” And it’s part of our lives.
My vision for
the children of today and tomorrow is a world in which people with
disabilities are integrated into society so that they will never
leave a dining hall in shock as I did years ago. They should rather
be able to sit down at the same table with those people.






